Several times a week I try to remind myself to sit down and blog. It’s so frustrating to realize how many months have gone without updating ...

Yesterday, Gavin had another visit to Amplatz for his Kalydeco drug study. I don’t know if we have been living in a blissful state of ignor...

On September 17th, 2013, Gavin got his first dose of Kalydeco. To be honest, I thought I would have this grandiose emotional moment. But li...

Kalydeco. It’s happening for Gavin. When Gavin was first diagnosed shortly after birth through the newborn screening test, we heard about K...

Before becoming  a parent, you see images/clips/tv shows/movies etc. of parents gushing over those “proud parenting moments.” Before kids, w...

Finally. Spring. After a snowstorm at the beginning of May left us with 15.5 inches of snow – we’re finally past one of the worst winters I...

We’re over it. Winter, that is. Nearly every morning, Gavin asks me if summer will be here by bedtime. Once again, on the 18th of March, w...