Why hello there blog – it’s been awhile. We’ve been having so much fun this summer, that I keep running out of time to post!
Last Thursday, Gavin had an amazing CF check up. He went from the 30th percentile (height to weight ratio) to the 48th percentile! Hooray! We also got a tentative start date for the pediatric Kalydeco trial – but I’ll wait to post more on that until we are more definite on the details.
We also loved Gavin’s instructions for his care between now and his next visit
After clinic, we headed up north for our annual Heise reunion, with a pit stop at Lake Mille Lacs to check out the view
We were missing quite a few faces this year, but we still managed to have a bunch of fun!
One of Gavin’s many firsts of the weekend, was getting the opportunity to shoot an air rifle (with assistance of course!).
And he did really well! Just look at that target!
All of the family members took a turn at shooting, including my grandmother – Go Gramma, Go!
After each shot Gavin and my Aunt Joly would run up to the target to point out the results
Gavin also jumped off the dock for the first time. His fear of the water sees to have completely disappeared – much to this mama’s delight!
Our fearless buddy also tried out tubing for the first time. While I was concerned he would panic, he just kept yelling, “faster! faster!”
His ride was certainly a lot tamer than the rides that some of us adults went on…
My brother on the left, Casey on the right
Me on the left, cousin Lacey on the right
My brother David and his girlfriend, Jessica
Along with all the fun in the water, Gavin got plenty of time playing in his “sand pit.” I am pretty sure I used an entire spray bottle of ‘Shout’ trying to get his clothes clean!
While digging, we heard Gavin yell, “Look at all these golf balls I found!” Low and behold, he had dug up a nest of turtle eggs
All in all it was a fun weekend, with perfect weather, filled with many fun activities.
Thank you to my cousin Lacey, for taking so many fabulous pictures!
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