Tuesday, December 29, 2009
His weight is on the front of our minds each and every day. At every meal we pack in as many calories as he'll let us. We do not make it a big deal when he won't eat...but praise him profusely when he does and it seems to be working! We are truly lucky that he LOVES to eat and so far hasn't been overly picky...but we are aware that the toddler years are ahead and that could easily change.
We are extremely adamant that he gets lots of protein everyday. When we started with baby food, we started with meats instead of fruits/veggies, and instead added those in later. We pack in the chicken, hot dogs or beef, make sure he gets cheese/yogurt, and finish off with fruits/veggies for dessert. When he does just have a bottle, I add an extra scoop or two of formula to pack in those calories. He eats (whether its just a bottle or actual food) about every 3 hours.
We rarely feed him babyfood anymore, he is apparently too cool for it most of the time, but I like it since I know exactly how much food is going in him...it's hard to keep track with table foods since so much of it ends up on his lap :) But, finger foods are the way to go for our cool 10 1/2 month old!
Posted by Jen at 6:05 PM
Monday, December 28, 2009
Click HERE to see the article
Pretty scary stuff for anyone, especially for those with CF. The pseudomonas aeruginosa that was mentioned in the article, is a bacteria that those with CF commonly struggle to fight against.
Ronnie just told me that he is featuring this article on his blog tomorrow, I'll connect you with a link as soon as he posts it.
Click HERE to see Ronnie's post on the article. Just another reminder as to why I enjoy his blog so much :)
Posted by Jen at 10:10 PM
Friday, December 25, 2009
Thursday, December 24, 2009
We've been busy playing inside...as usual...enjoying Gavin's new Christmas toys
The world almost ended when he fell
into his toy bin...
to the window sill...
want to share some food?!?
Just kidding, it's ALL mine!
Gavin has been having a blast playing with his big cousins while they are in town, and it's funny to watch him interact with them. If Grant has a ball (all three received their own) Gavin thinks he needs it, even if he already has one in hand. If the two kids are running circles around the living room, Gavin stares at them in amazement. If Grandpa tickles Grant's belly, Gavin watches very closely...wondering why his Grandpa is playing with that kid!
We hope that you all have a very Merry Christmas Eve! And for those of you having to travel in this bad weather, drive safely!
Posted by Jen at 7:10 AM
Wednesday, December 23, 2009
Just a reminder, this year's annual CF walk will be held May 1st. In the near future, I will be letting you know multiple ways you can help donate to our team, and help to make this magical wish come true for all our CFers.
Posted by Jen at 6:55 AM
Monday, December 21, 2009
Posted by Jen at 6:33 PM
Sunday, December 20, 2009
He got the Fischer-Price Laugh & Learn Learning Home Playset...I will have to post pictures of him playing with that later. It took awhile to put the darn thing together, by the time it was done it was past Gav's bedtime, but he loves it and has been crawling through it quite a bit at home.
As you can see...he got quite a few more presents...
Look how big his eyes are,
We attempted to get him to look at his cards
but he didn't care too much about them :)
We were very thankful to have our "new to us" mini van to take everything home...we literally had a car full.
Today, we spent some time over at Casey's grandma's home celebrating Christmas with the Brown Family...pics of that to come!
Posted by Jen at 3:59 PM
Saturday, December 19, 2009
One more beautiful face to remind you....
Posted by Jen at 7:51 AM
Thursday, December 17, 2009
While we're always up for the day long before then, we are rarely out of our pjs...I think Casey had to tell me to get out of bed about 5 times :)
Casey's dad is involved in Sertoma in Rochester and each year they invite the member's children/grandchildren for a Christmas breakfast. (His dad had shoulder surgery, hence the sling)
He got his first ever Christmas present!
But obviously caught on quickly!
What could it be?!?
Ohhh! A new Vtech toy!
toy everytime we're in a toy aisle but
we never actually bought one
Posted by Jen at 8:35 AM
Tuesday, December 15, 2009
half of the windows that look out over the front yard
Living in the townhome has its pluses and minuses...but a huge plus for us was not having to shovel any of the snow! Wooohoo! Next winter when we're in a home of our own again I am sure we'll miss this aspect of it!
Here, the weather on the news is always interesting...people aren't joking when they say the weather here can change in five minutes. For those of you in California, you would probably freak out seeing more than one temperature/climate change in the five day forecast :)
So, when the weatherman said that winter storms were coming, many of us thought...we'll believe it when we see it! Quite often they'll warn of a storm and we'll end up with just an inch or two of snow...but obviously, this time they were right on.
This morning the windchill was -11...overnight it went down to nearly 30 below. I don't mind the cold, but a break every now and then would be nice! Casey and I would like to get out skiing and we'd love to be able to pull Gav around on the sled!
At least with the cold weather happening we got the tree completed last week. Notice the lack of ornaments on the bottom tier?!? Hmm..wonder why that is...
There is also a lack of presents under the tree...not because we haven't bought any, but because a certain little stinker already tried to open his! I also noticed this year, that the ornaments we have that aren't red/gold are all snowmen, funny thing is I didn't plan this and didn't notice it the last couple of years. Well, I guess I'll just have to start a collection :)
Posted by Jen at 9:20 AM
Monday, December 14, 2009
...finishing up Christmas cards, wrapping & buying presents, walking around the mall, visiting Santa...notice how everything is indoor related? Well, the last few days we have woken up to windchills well below zero with highs being in the very low teens...a tadbit too cold for our 10 month old! We just bought him a new sled so we can't wait for it to warm up a bit (come on upper 20s!) so we can take him outside to enjoy the snow from last weeks storm!
Posted by Jen at 8:32 AM
Thursday, December 10, 2009
This week, it's from the perspective of being a CF mom...for those of you who don't deal with this disease each and everyday, it will give you an inside view of our "normal."
For those of you who do deal with this disease everyday...enjoy the list, and feel free to make your own!
What I Know For Sure: CF Mom Edition
- You will talk about poop more than you had ever imagined. Wayyyyy more than the typical parent. "Is it solid? Oily? How many today? Think it's because we gave him too few enzymes with that meal? Oh no, major explosion!" become common conversation topics.
- You thank God everyday for insurance. We get at least 2 bills (or breakdowns of the bills) a week...on a good week...and so far have had to pay very little out of pocket. CF is ridiculously expensive and we're not even a year in yet.
- You find enzyme capsules everywhere. In the nook on your kitchen floor, in coat pockets, the cup holders of your car...I'm sure I'll just find just the capsules themselves once Gav gets big enough to swallow pills...but for now, empty capsules. everywhere.
- You and your child see your CF team way more often than you see most of your family. Like, way more often. Just 10 months in, I can't even remember how many times we've been in and out of doctor offices...thank goodness that staff loves our child to pieces!
- You struggle to find the rare foods that still contain lots of calories and salt. I hadn't realized that nearly everything is now low sodium...until I had a child that craved/needed that extra salt. Even baby food is labeled "healthy" these days...what's a mom got to do to get a food packed full of fat, protein & sodium?
- When you see other parents feeding their kids, you get very nervous that they aren't preparing their enzymes with their food...how is their kid going to digest that food?!? Major stomachaches and explosions ahead!! Oh yea...never mind...
- You already know when next year's Great Strides Walk is...ours is May 1st for those who want to walk alongside us!
- A lazy morning will still always include breathing treatments and CPT's...same goes for the lazy evenings. But at this point, they are so routine...it's very weird to think that other families don't do the same two...three...four...times a day.
- You know where your child is on the growth chart (height, weight and height:weight) by heart. You know what percentile your child falls in for each. These numbers will always be in the back of your mind at every single meal, on the drives to each clinic visit, and on the drives home.
- With every advancement he makes we are keenly aware of how lucky we are to live in this day and age. No matter if the accomplishment is big or small we try not to take any of them for granted...just a couple of generations back, our son would probably not be alive today. Thank goodness for medical advancements, a loving CF team, and hope for a long future!
There are so many, many more things I could list...so CF moms, continue the list! What do you "know for sure," by being a CF mama? Of course I wouldn't know where I would be (mentally, emotionally, spiritually...) without all of your support!
Posted by Jen at 5:00 AM
Tuesday, December 8, 2009
This was the first time Gavin had ever spent a night away from me (he was at Casey's parents). I thought I would have a hard time with it, but I think I was so ready for the break that it didn't phase me like I thought it would. And he came back in the morning with a new skill...he now can figure out what "down" means...he can't say it yet, but if he is in his high chair he points down and looks over the edge of his chair toward the ground.
It was nice to get a group of Casey's friends together, with everyone busy getting married and having babies, it's often difficult to get people together in a large group anymore.
We were so busy having fun that I forgot to get a picture of the entire group together, there were thirteen of us in all, but Casey's good friend Emily got a couple shots of a few of us.
Posted by Jen at 6:17 PM
Sunday, December 6, 2009
I do not consider myself to be a Miley Cyrus fan...but today she scored quite a few points! I learned that her new tattoo (which I'm also not much of a fan of...) that says 'Just Breathe' is in honor of a nine year old girl named Vanessa that passed away from cystic fibrosis in 2007.
The more awareness on this horrible disease...the better! We NEED a cure!
Posted by Jen at 4:15 PM
Saturday, December 5, 2009
Getting the bath water ready
This is what happens when your head size
is in the 95th percentile :)
Ok, I'm done!
Get me out of here please!
It's amazing how much he changes each and every day. On Thanksgiving he didn't really say any words except for the occassional Momma or Dada. Now just a few days later he loves to say up! (as you saw in the previous post) and whenever he drops (aka throws) something he says uh oh! He started doing this on his own out of the blue when we were wandering through the Apache Mall the other day and he dropped something.
Posted by Jen at 7:00 AM
Friday, December 4, 2009
It's been so much fun listening to Gavin learn new words and their meanings. One of his latest words is up! Its the only one I've been able to catch on tape, usually once he sees the camera he's more interested in getting a hold of it than showing off his new tricks. This time a toy on the floor was way more important than talking with me, but oh well...at least he showed off a little!
Posted by Jen at 7:29 AM
Thursday, December 3, 2009
Posted by Jen at 5:16 PM