We had another visit to our CF clinic today, Gavin now weighs almost 11 pounds! He is now in the 50th percentile for both his height and weight! He starting at the 27th percentile so he is definitely making some progress! There has been proof that the better Gavin's weight and nutrition is, the better his lung function is/will be, so we were thrilled and so were his doctors! This also means that we don't have to put Gavin on any further medication for him to absorb his food, whew.
Gavin now uses a nebulizer with Albuterol two times a day, right before we do his chest percussion treatments. This will help to open up his airways making his CPTs more effective. No worries, all of this is still just preventative and also to get him used to the treatments. I cannot imagine trying to start all of this with a toddler, it would be impossible! This will all be Gavin's "normal" and he'll never know life without CPTs and his nebs (unless there is a cure someday!)
Once again, our nurse reminded us that kids born with CF today that are treated at the U of MN are expected to live a full life span. It is so reassuring to hear this! We now understand why people call their CF teams and other CF families their second family. Gavin has seen his doctors more already than most of his family!
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