So here’s the deal. I have this awesome…SERIOUSLY awesome, friend named Josh. Several years ago – not long after Gavin was diagnosed – I felt the need to find some adults living with Cystic Fibrosis. PROOF that life still happened even with this disease. I’m pretty sure we eventually connected after he commented on my blog and I clicked over to his site to see what he was all about (correct me if I’m wrong Josh).
After a few minutes of looking at pictures I realized.
Hey, I know that place he’s standing in!
Hey, he’s wearing a Twin’s jersey.
He lives in Minnesota! YES!!!!!!
I don’t know why – but “meeting” adults with CF in different states made them…well, real…but not as real as finding someone living on my turf. While I crave the information all of my adult friends have given me – I have an extra sense of love for Josh and our similar love for our home state.
After a couple years of going back and forth online – a missed meeting when Gavin was in a horrible mood (weird) – we finally got to meet face to face at this years Minnesota Cystic Fibrosis Education Day. I also got to meet his wife and mom – both of which were fantastic individuals.
Now here’s the gist of my story, Josh has created a character named Moganko…
Moganko is a puppet that helps kiddos with Cystic Fibrosis understand their disease, what their extra care is for, and why it is so important to keep up with treatments. (But don’t get me wrong – it’s just as much fun to watch as an adult!) Gavin has completely fallen in love with this character. He’s getting old enough to realize that not everyone around him has CF, and seeing someone else go through treatments just like he does has been a huge blessing to our family. Listening to songs/raps about the treatments he does/the medicine he takes/the extra work that is necessary brings a priceless smile to his face. While the life we live may not be normal – Josh & Moganko have helped Gavin realize that he’s not alone and that there are people out there just. like. him.
As a mom, I couldn’t ask for anything better. Life is hard enough – much less with CF – and following Moganko’s journey has made our lives even more enjoyable.
Josh’s goal is to get Moganko teamed up with the Muppets – yep those Muppets - to create awareness for this disease. And we need your help. No, I’m not asking for money – just asking that you take a moment of your time to check out his website
AND/OR, take a moment and ‘LIKE’ Moganko for Cystic Fibrosis Awareness on facebook. In both locations, Josh has posted amazing videos, blogs, songs etc. all helping kiddos just like mine live a little more peacefully with this disease. Josh’s goal is to get 2,000 likes on his Facebook page by Thursday as he heads into a (not so secret) meeting that is working toward his goal. Please help him out with a ‘LIKE’ and please SHARE this link on your facebook page. I know my friends will do anything to help my little guy live a long and healthy life – and this is a completely free way to help! Mucho love and thanks in advance!
On a slightly different note – this year’s Great Strides Walk is on May 5th and we will be walking here in Rochester (vs the Twin Cities in years past). If you would like to walk with us – or walk in a different location – please let me know and I will get you all of the information you need!