Groettum Family

Friday, December 24, 2010

Posted by Jen at 5:00 AM

Email This BlogThis!Share to Twitter Share to Facebook Share to Pinterest

3 comments:

MandieDecember 24, 2010 at 7:09 AM
Merry Christmas and a Happy New Year to all 3 of you.
ReplyDelete
Replies
BGDecember 24, 2010 at 7:52 PM
Sweet picture of you all! Merry Christmas!
ReplyDelete
Replies
UnknownDecember 25, 2010 at 12:22 AM
Merry Christmas!! <3
ReplyDelete
Replies

Add comment

Newer Post Older Post Home

Subscribe to: Post Comments (Atom)

Follow this blog

What is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections & obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF.

Our team of doctor's have a goal for Gavin (and other's born today w/CF) to live a full lifespan. We are confident that he will live a long and happy life! We are very lucky to have the University of MN as our CF Clinic as it is one of the best in the world!!

Gavin's mutations are G551D and Df508. Both are currently being studied in clinical trials for two therapies that are designed to correct the function of the defective CFTR protein made by the CF gene (his mutations), allowing chloride and sodium (salt) to move properly in and out of cells lining the lungs and other organs. If these medications make it through the clinical trials they will allow Gavin to live a much more "normal" life!

Gavin's Current Treatments

Vest treatments 2x per day

Albuterol + Mucomyst via nebulizer 2x per day

6 Creon 6 w/every meal

1 mL of Vitamax vitamins 1x per day

1 puff of Flovent inhaler 2x a day

Blogs We Love

Enjoying the Small Things

30 Easter Basket Stuffers for 2024
Feisty Kaelyn

January 2022
Bennett Brinson Gamel

The Day We Waited 11 Years For...
The Spohrs Are Multiplying

Surfing Sunday 5.02
Nathan's Fight

1
Lovin Lane

LIST OF: Chronic Illnesses, Life-Threatening Illnesses, and Severe Disabilities
The Seal Bark

The Final Email
New kind of normal
She is Our Angel

thankful
MckMama

4 Ways Your High School Child Benefits from the Performing Arts
Not so bright and shiny

Free...
A Cure 4 Lil' Chris

8th Annual CF Walk is this Sunday!!
Mommy For Madeline

Quarterly CF Clinic & Culture Results - October 2017
Run Sickboy Run

A Forever Home
Madison Jo

Memorial Day Weekend 2016
Skyes the limit!!!

Cara membuat rumah minimalis
Phoenix's Fight

Resep Kue Tart Spesial Enak
A Matter of Life and Breath

Swimming Lessons
Jaxsons Fight

Because it's magic!
Jess's Journey

Valuable tips on how to learn Arabic the right way
Masto Mama Chronicles

Always
Confessions of a Cyster

Minding My Own Business
Just Another Day In Paradise

Seasons of Change
Our Story

Summer Vacation 2014 Destin, Florida
matt, liz and madeline

interview with cnn & maddy’s first race.
the magic number

Three
Eli's Journey

Elijah Will Be Represented at Boston Marathon 2014
Our Journey of Love

Merry Christmas from Our Family to Yours!
...where laughter lives: The Riggs Family

Cool Christmas Gift...
A Little Something Extra

Magic Month: Raising Awareness For Her Little Something Extra
Hardly Ideal

Multipe Sclerosis: A Pill
the story of a boy

Upon reflection...
Road to Domestication

That's one way to do it
Peter's Pavement Pounders

Cystic Fibrosis Walk: Join or Donate
The Jobes

GREAT STRIDES 2013
Radek Loves to Breathe

Hospital Time Againnnnn
My CF Journey With God

Graduation and Health Update
Bring Makayla Marie home
Prairie Family

Back and Ready...
Cute as a button, sick as a dog!

I'm back!!!!
The Tormey's: Life with a Tween and Toddler

Emma's Novembers
The adventures of Margaux, Ryan and Benjamin Hughes

Tap, tap, tap....
Here we go!

Confessions of a New Mama: Part 1
Smile and Wave

Come On Over!
Joly's World

MOB #3
The Starkeys Life

My baby is a BIG GIRL!
365 Days of Groettum's

2/15/2011
Landherr Family

The Honest (and bothersome) Truth...
a day in the life of a CF mom

Needle? What needle?
Never Give Up

What's New
Morgan and Grant

Crazy Fall
MADE
my charming kids
Virginia Blue - The life of a family with a CF baby -- Let's make CF stand for Cure Found!
The Starkeys
radeklovestobreathe.com
Two Orange Cats
Gwendolyn Strong — Gwendolyn Strong
Livia's Hope

Show 10 Show All

Blog Archive

► 2013 (10)
- ► December (1)
- ► October (1)
- ► September (1)
- ► August (1)
- ► May (2)
- ► March (2)
- ► February (2)

► 2012 (20)
- ► November (2)
- ► September (3)
- ► August (3)
- ► April (4)
- ► March (2)
- ► February (2)
- ► January (4)

► 2011 (76)
- ► December (1)
- ► November (4)
- ► October (2)
- ► August (5)
- ► July (5)
- ► June (3)
- ► May (9)
- ► April (10)
- ► March (13)
- ► February (6)
- ► January (18)

▼ 2010 (281)
- ▼ December (18)
- ► November (17)
- ► October (18)
- ► September (26)
- ► August (10)
- ► July (22)
- ► June (26)
- ► May (25)
- ► April (33)
- ► March (26)
- ► February (31)
- ► January (29)

► 2009 (202)
- ► December (20)
- ► November (19)
- ► October (24)
- ► September (23)
- ► August (21)
- ► July (19)
- ► June (25)
- ► May (25)
- ► April (16)
- ► March (10)

hit counter

Subscribe to our blog!

Posts

Atom

Posts

Comments

Atom

Comments

Simple theme. Powered by Blogger.