Monday, March 21, 2011



Hello All! It’s Great Strides time! We will be walking on May 7th in Minneapolis to raise awareness for Cystic Fibrosis!

As many of you know we are this close to a medication that will control Gavin’s disease. This oral medication called VX-770 is geared towards the genetic mutation G551d, which Gavin has. Only THREE PERCENT of the CF population has this mutation, which is about 300 people in the United States. Needless to say, we are extremely lucky and should probably be out buying some Powerball tickets!

Here’s the kicker, this medication is here because of you. The Cystic Fibrosis Foundation (CFF) depends solely on donations, they do not receive federal assistance. The majority of funding for this new miracle drug was made available because of all your generous donations.

For years, people were donating with the hope of such a medication, now there is tangible proof that your help truly is making an enormous difference!
I know that the economy is still struggling, and many of us don’t have a whole lot of extra money floating around, but these donations are truly lifesaving for our little guy. Whether it’s one, five, ten, or one hundred dollars, every single penny counts in our fight against Cystic Fibrosis. We refuse to let this disease control our son, but we need your help to keep him ahead in his fight.

So please head over to

and make a donation for the Gav man and all of those living, and fighting against, Cystic Fibrosis. Thank you in advance!

Casey, Jen & Gavin

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