Friday, February 12, 2010


This girl is pure inspiration. Her name is Emily and she is a prime example of how CFers are changing the way we think…no longer are they dying from CF, but they are LIVING with it.

She ran half marathon in Miami on January 31st, along with another cyster (CF sister) and fibro (CF brother) who has had a double lung transplant.

They also raised twenty thousand dollars for CF!

Click HERE to read about their day.

Heck, I’m not sure I could even run 3 miles anymore…much less a half marathon…and I’m the one that is supposed to be “healthy!”

Go Emily!

side note: she is also enrolled in the clinical research study for the new Vertex drug, which could change Gavin’s life & future, and has nothing but great things to say about it!


  1. Emily rocks the socks off of CF!!! She is definitely one of my favorites!!!


  2. Wow, what amazing people! I couldn't run a marathon either and I'm "healthy"