Thursday, January 14, 2010


I’ve been had.



Lied to.

And I am not a happy camper. Not long after Gavin was diagnosed with CF a gal named….let’s call her Jane Doe…messaged me through facebook to let me know that she was in her late 20s living with CF.

Jane Doe was so supportive, lived nearby and even though she had had a lung transplant, she was doing well and living life. It was so cool to “meet” an adult CFer.

Well two days ago, I was contacted by several individuals that Jane Doe doesn’t actually have CF.

Um, what?!?!

At first I didn’t want to believe it. I was shocked and in disbelief.

But then I started putting the pieces together.

  1. She had never heard of the latest Vertex drugs in clinical trials right now. Or several of the others.
  2. Every time we had plans to meet up (she “lived” where we currently live now) she’d back out at the last minute.
  3. Once we moved to Rochester, she suddenly had to move home, and then moved to Cleveland for transplant #2 when I mentioned I’d drive out to visit her.
  4. She had my cell number but always avoided the question when I asked for hers.
  5. She had never heard of the Gift of Life Transplant House in Rochester where she currently resided and had just had a transplant. (She probably freaked when she realized Casey’s dad is on the Board of Directors there)
  6. Almost all of the pictures on her facebook are of her only. (no family members, other friends etc.)
  7. She avoided questions about people we may have both known from the small WI city she was from. (I went to college in WI)
  8. People have proven that the latest pictures she had posted on facebook of the docs and nurses that aided her in Cleveland…were stolen off of someone else’s Flickr site.
  9. It has been proven that the Cleveland Clinic did not perform a lung transplant on the day she claims to have received hers.

Still not sure why it took someone else to alert me…putting all of those “facts” together makes it pretty obvious. There’s more that I didn’t even list…sigh

I don’t know if I should be mad at her, or feel bad for her. She’s obviously a very lonely and mentally unstable person to make up such lies…and to go to such extremes to try to keep them all in line.

But I do feel like I wasted uncountable hours worrying about her…and praying for her…

Have I confronted her? No.

Why? Not worth my time.

The facts are there. There is no need to spend anymore time fretting about it.

Unfortunately she is not the first to fake having CF in the internet world & there are probably others just like her floating around claiming to have other diseases. Hopefully someone will be able to track her down, and all the others out there, so they can receive their deserved consequences and receive the help they so greatly need.


  1. I hate that...that is so wrong. It makes us that really do have CF and have had a transplant very angry that she would fake such a thing. I hope it turns around and she suffers consequences from it. (sorry...that just makes me so angry).

  2. You weren't the only one scammed. And all signs point to this being someone who has already scammed most of us before. Sigh. Live and learn.

    The important thing is that there ARE lots of incredibly strong adults living with cystic fibrosis, some after lung transplants and some with their original lungs. We are all behind you and Gavin 100% and are more than happy to help out with any questions or whatever else. And we're a lot cooler than most of the fakes out there, which is just an added bonus ;)

    You're totally right that she's not worth your time or energy, so don't worry about confronting her. It never helps anyway. But if you need support or some extra prayers for your beautiful baby boy, you know where to look!

  3. I came across your blog after you commented on mine, I'm so sorry to hear that you've been had. It's so sad that people feel the need to scam others and get prayers for diseases that they don't have.

    There was a CF concern in my extended family and I did learn a bit about it,n ot much just read and realized how much is involved in daily treatments

    Thank you for your comment on my blog I really appreciate it.

  4. I can't believe that!! I hope it's not someone I know! I'm trying to think of a 20 year old CFer that I know, but most are mid 20's I think. Anyway sorry you have been had. I hope it never happens again.

  5. She "apologized" for her actions, but as a chronic liar, and someone that I've doubted their validity since the first time I chatted with her, I really don't know how much of this is sincere.