Over the last couple of months, several of my fellow CF moms have been discussing the point of life that I am dreading.
That age where our little CFers figure out that they’re different. Where the questions begin. Where our answers will be uncertain.
Quite often, I “forget” about CF. And for those of you who don’t live with CF everyday…you might have a hard time understanding that. With all the extra pills, vitamins, and inhaled meds he takes everyday, plus the vest…it’s a lot. But to us, it’s normal. And we do our very best to make sure that he feels normal.
But our Gav man is developing into a smart little boy. He walked early, talked early…and I know it won’t be long until those questions begin. And I’m not sure if I’m ready for it.
This little boy is my life, and while I do my very best to remain positive 95% of the time…that other 5% is back there hiding, coming out when I least expect it.
It’s not uncommon for mom’s to wish & pray that they could slow down time…to keep their little ones little for just a little while longer.
For me? I wish I could freeze time…keep him little, innocent and “healthy.” Freeze time until that cure is here. Freeze time so he never has to ask those questions. Freeze time so I never have to answer them.