Thursday, June 25, 2009

Good Clinic Visit!

Gavin had another CF clinic appointment and all is well! He weighed in at 15 pounds 6 ounces, that is just under two pounds in one month! Woohoo! I truly think that he is gaining so well because we've started feeding him every two hours or so. We did get the go ahead to start him on solids. CF kiddos are a little different in this aspect, we will start him with rice cereal and then will move directly onto meats and will add veggies/fruits in later. This is because the meats have the fats/proteins that he needs. We will also be adding olive/canola oil to his rice cereal to add calories. I asked about adding coconut oil but our nutritionist said to avoid that kind of oil, its not the "good" kind of calories she wants him to get. We are also able to give him Pedialyte on the days that he seems overheated/sweaty to keep him from getting dehydrated...and guess what. He doesn't have to take enzymes with that drink...woohoo!

We got scheduled in for his Infant PFT and bronchoscopy at 9 am on July 27th. We are the very first family at our clinic to do both procedures back-to-back so hopefully it all goes smoothly. We learned that we have to deprive him of sleep (so that he is sleepy when they give him the oral meds that will sedate him) and he cannot eat after 6 am. Oh boy...that should be interesting. For those of you who have met our little guy, when he is hungry or tired he is a very crabby baby! Oh well, we do what we gotta do!

As you have read, Gavin spends hours throughout the day in his jumperoo, so I combined two of his favorite things. His jumperoo and playing in just a diaper :) Boy did he have fun!

This picture sums up many of our evenings. All three of my boys are lounging on the living room floor. Casey was "talking" to Gavin who decided it was more exciting to roll over and stare at Louie, who in turn didn't care at all about either Casey or Gavin :)

When Gavin is not interested in staring at Louie (which is rare!) he is often found playing with his toes.

He also loves to have tummy time playing on the boppy. The other day I came back into the room and found him out like a light all curled up.

I left and came back again and he was using it as a pillow...

We will miss you Michael Jackson. You were my most favorite performer growing up. I spent 15 years of my life dancing and you were such an inspiration! I still cannot wrap my head around the fact that we will never see you perform or sing ever again. You will be greatly missed.


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  2. Great news about the weight gain! He's such a cutie, cutie, cutie. Keep up the good work, awesome mamma!

  3. Congrats on the great clinic appointment! I'm sure he will love solid food :)

    Question: are you doing the bronch as a routine thing? or is there a need to do it? I just don't quite understand why certain CF centers perform bronchs on such YOUNG kids, especially if it is more of a routine/pre-caution thing than if there was an actual need. Our CF center never did bronchs period, unless there was a need to. We also don't do infant PFTS on a child as young as Gavin either. Just curious to what your opinion is on this. Bronchs are risky for a child this young (not saying dangerous, but to put a little one through it). Just my opinion though! Let us know when it is so we can be praying all goes well!